May 5, 2019
May 5, 2019
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Ependymoma Awareness Day is May 5, 2019!

2018 EAD

Contact Your Local Officials

You can create awareness of ependymoma where you live! Ask your local officials to recognize Ependymoma Awareness Day. You can download a sample proclamation and sample letter to send to your local officials. 

Contact Your Local Media

You may also want to contact your local media including newspapers, radio stations and TV stations to let them know about your efforts. These media outlets are often interested in covering awareness events in their local area.
You can download our sample press release asking your local media to run a featured story!

Interested in creating your own event?

You can order your own Awareness Day kit! Included in the $25 kit, that is available for purchase by clicking here, is an ependymoma information packet, an Ependymoma Guide, 5 buttons, 2 temporary tattoos, 10 butterfly balloons, and 5 stickers!

You can also create your own fundraising campaign or event and encourage others to donate by sharing your custom page with your family and friends! 

Get Involved and Make A Difference

Now in its eighth year, this campaign is an international effort from the CERN Foundation in partnership with medical professionals, patients and caregivers from around the world. Together, we have designated May 5, 2019, as Ependymoma Awareness Day!
The CERN Foundation is thrilled to announce that this year’s Ependymoma Awareness Day will be held during the National Brain Tumor Society’s “Head to the Hill” event in Washington, DC! The CERN Foundation is honored to be a part of this three-day event, held on May 5-7, at which advocates from across the country descend on our nation’s capital to share their stories and advocate for public policy issues that are important to the brain tumor community.
CERN encourages all those who support the ependymoma cause to attend the 2019 Head to the Hill event! Together we can drive the agenda forward for better treatments, stronger research, and ultimately a cure.  
Register to participate in Head to the Hill.

Butterfly Release

The CERN Foundation will commemorate Ependymoma Awareness Day with a mass butterfly release that will take place on May 5 during the 2019 Head to the Hill activities. The butterfly release will be video-taped and posted on the internet so that supporters unable to attend can participate and share in this moving occasion.  View the 2018 Ependymoma Awareness Day butterfly release.
RSVP to the butterfly release.

Show Your Support!

The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers. Please consider supporting our efforts by making a donation or creating your own online fundraising campaign.

Create Awareness Where You Live!

On a local level, we urge you to participate in an ependymoma awareness activity, helping to create a greater understanding of the disease.
You could support awareness in the following ways:
  • Create your own Awareness Day event!
  • Raise funds to help with research!
  • Share information on ependymoma with another person who has never heard of it!
  • Tell your healthcare providers about Ependymoma Awareness Day!
  • Document your awareness efforts on your Facebook page, Twitter account or blog and use the hashtag #CERNbutterfly!
  • Educate colleagues, co-workers, school groups and congregations!
  • Order and wear an ependymoma awareness lapel pin or CERN hat!
  • Display or release CERN awareness balloons! 
  • Seek recognition from your local government or ministry of health!
Purchase a CERN hat, lapel pins, balloons, temporary tattoos or buttons.
For more ideas, read how others around the world have commemorated Ependymoma Awareness Day. For more information, contact us.
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CERN Foundation PO Box 217 | Zionsville, IN 46077 US
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