Help us Cure the Cycle

Mark your calendars for October 4, 2025, for our Cure the Cycle challenge in memory of Jim Stavas.

You can make a difference no matter where you are in the world or what form of movement you prefer. Join us in raising crucial funds and supporting our mission to end urea cycle disorders.

Last year, over $55,000 was raised, which allowed us to support a fellow with the inaugural Cindy Le Mons Fellowship Grant. 

Registration for the event is now open. Click below to join us to 'cure the cycle'.

Recap of the
2025 Virtual Conference

Thank you to those who joined us for the 2025 Virtual Conference. It was both a wonderful opportunity to connect with our UCD families and an educational opportunity featuring numerous speakers from the UCD medical community. If you were unable to attend, you can learn more about the event and catch the replays of the presentations by clicking the link below.

Safely and Securely Participate in the NUCDF Patient Registry

If you have been affected by a urea cycle disorder as a patient or caregiver, you can join the UCD International Patient Registry. By joining the Registry and completing your profile survey about your own unique experience with UCD, you are contributing to a global database about the prevalence of the disorders, the accessibility of diagnosis, care, and treatments, and how the disorder affects patients.

Back to School

It's that time of year again! It's back to school time. We know that school can be difficult for those within the UCD community for a multitude of reasons and we want to help in whatever ways we can.

That is why we've created some back to school resources to help you and your littles along the way. 

UCD ECHO

We are delighted to share that our second UCD ECHO event was a great success. We appreciate the contributions of all those involved. Find recordings HERE.

Registration is now open for Session 3: The Importance of Diet, scheduled for Tuesday, September 16. 

UCD Symposium

The 6th International Symposium on Urea Cycle Disorders (UCD) will be held in Kyoto, Japan, from September 1 to 2. The event will bring together a distinguished group of internationally recognized clinicians and scientists who are at the forefront of research and clinical care in the field of urea cycle disorders. NUCDF is proud to co-organize this event.