April 2024

In early April, the 2024 NUCDF Family Conference “Legacy of Hope” welcomed 54 families from the U.S., Puerto Rico, Brazil, Peru, El Salvador, and Canada, as well as nearly 40 medical professionals focused on improving the lives of people affected by urea cycle disorders. The “Legacy of Hope” conference theme guided the program as attendees honored the past and looked to the future. 

At the Family Conference, Dr. Brendan Lee, M.D., Ph.D., Baylor College of Medicine, announced two new programs named in honor of Cindy Le Mons that will build on her legacy:

The Cynthia Le Mons Memorial Lecture Series on Metabolism will be an ongoing lecture series featuring professionals in the field of genetics sharing high-impact research and insights. The American Institute of Neurointegrative Development donated $150,000 to endow this lecture perpetually in Cindy's honor. The NUCDF and Baylor College of Medicine will co-host this lecture series nationwide.

The NUCDF Cynthia Le Mons Fellowship Grant will support early-stage investigators conducting research in urea cycle disorders. Supporting young researchers was very important to Cindy, and this fellowship grant will continue this in Cindy's honor.

There are many ways to get involved with NUCDF: