July 2024

Get our teacher's guide. This has been developed as a resource for school personnel who educate and care for children with urea cycle disorders (UCD).

Kids with urea cycle disorders (UCDs) need special attention to their dietary needs to manage their condition effectively, as well as close monitoring of medication and lifestyle.  

Marifi Escobar, a UCD parent and expert patient advocate, shared a presentation on the impact of UCDs on daily lives, learning processes, and the educational challenges associated with UCDs. 

Mark your calendars for the 10th Annual Cure the Cycle Challenge 
on Saturday, October 5. Plan to join us in Napa Valley with your bike, in your neighborhood for a walk, run, or ride… or with a donation for the riders and teams. Funds will support our patient advocacy, education, and research efforts. We're working to find a cure for urea cycle disorders and won't stop until we do!