Celebrate Rare Disease Day on the Rarest Day of the Year!

Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year. The National Institutes of Health (NIH) is hosting a Rare Disease Day event today, and you can watch it live! Here is the link: https://videocast.nih.gov/.

Learn more about the Longitudinal Study of Urea Cycle Disorders (UCDs), a research study being conducted by the Urea Cycle Disorders Consortium. this study (number 5101) focuses on long-term observation of the impact of UCDs on growth and development, including physical, neurological, and cognitive functioning.