HypoPARAthyroidism Association
Quarterly Newsletter
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A Season of Growth, Connection & Momentum |
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As we head into fall, there is so much happening at the HypoPARAthyroidism Association!
This issue highlights exciting progress, new partnerships, and opportunities to connect.
Inside you will find updates on:
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Our newly updated website and expanded resources
- Pendopharm joining HPA as a new industry partner
- International growth and our upcoming trip to Australia
- Our Annual Patient Conference–just one week away!
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Family genetic testing, new research, and clinical trial opportunities
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From expanding resources and reaching patients around the world to bringing our community together at conference, it has been a busy and exciting summer—and we’re not slowing down!
Thank you for being part of this community. Everything we do begins with listening to patients, understanding what you need, and finding new ways to educate, connect, support, and advocate.
We can’t wait to see so many of you at conference.
Kind regards,
The HypoPARAthyroidism Association team
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Welcome to our new partner organization |
This November, we’re excited to partner with CaSR Australia and participate in the Fifth International Symposium on the Calcium-Sensing Receptor (CaSR-5) in Sydney. We’ll have a booth, connect with clinicians and researchers, and host patient meet-ups to listen and learn directly from Australian patients and families.
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| We are holding our first regional meet up in Canada.
Join us Sept. 26 at 11 am at State & Main
3584 Major Mackenzie Drive West, Vaughan, ON L4H 3T6
RSVP: https://www.zeffy.com/en-US/ticketing/regional-meet-up
Vancouver is next in December. Watch your email and our social media for more details.
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If you or someone you know has been diagnosed with ADH1 and has other members of the family (parents, cousins, siblings, etc) that would like to get tested we have an event you might be interested in.
We come to you or your family and provide no-cost testing and a meal that day.
Want to know more? Contact Patty Keating at pkeating@hypopara.org.
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Virtual Registration for the International HypoPARAthyroidism Conference is Now Open |
September 18-20, 2026
Recordings will be provided.
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In support of improving patient care, this activity has been planned and implemented by HypoPARAthyroidism Association and Pinnacle Conference, LLC. Pinnacle Conference, LLC is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
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| We're launching the Hypoparathyroidism Association Youth Program, and we'd love for you to join us! Come meet other young members of the hypoparathyroidism community and help shape this exciting new program.
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| First Meeting: Tuesday, November 3, 2026 at 7:00 PM ET
To learn more or sign up, contact Katie Gillick, Hypoparathyroidism Association Board Secretary, at kgillick@hypopara.org.
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Website Updates
We have made many updates and more are coming. We hope you will go to hypopara.org and check them out.
Meanwhile, here are some highlights:
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| 1650 Double Falls Dr
Frisco, TX 75036
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