My Rare Diet, Rare Disease Day, and more
Join us in celebrating Rare Disease Day! February 28 |
Rare Disease Day is the globally coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
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You can join us by downloading the ready made graphics from our toolkit and sharing them on your social media!
Celebrate Rare Disease Day with NUCDF!
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The wait is over!
We are ready to launch phase II of My Rare Diet. NUCDF has been working to develop MyRareDiet, a unique site specifically designed to help UCD and other Inborn Errors of Metabolism patients and caregivers more easily track, monitor, and manage dietary treatment.
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We are busy planning something special for UCD Awareness Month in April. Make sure to have your mailing address updated!
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The National Urea Cycle Disorders is proud to share our involvement in a new paper from the National Organization for Rare Disorders (NORD) outlining policy principles and recommendation to fortify public trust in the U.S. Newborn Screening System.
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