Gaining MomentumProgress in the Search for a CureOn behalf of all of us at NETRF, I am pleased to present our 2018 Annual Report. The report shares many stories about the collective power of people who are moving the NET field forward to Spark Hope for neuroendocrine tumor patients. In 2018, NETRF had more donors, funded more research projects, and reached more patients and caregivers in the NET community than ever before. We hope you enjoy reading about the highlights of our work. Spark Hope, our $10 million campaign for research, continues in 2019. We are making steady progress toward our ambitious goal. All donations are matched, dollar for dollar. NETRF is proud to be close to the midpoint in the campaign, less than one year after we launched Spark Hope.
As you read the Annual Report about NETRF’s impact on the search for better treatments and cures, please consider helping us reach the next milestone. As of this month, we have raised $4.6 million and hope to celebrate the halfway point, $5 million, by Labor Day. We are truly grateful for each and every gift.
Thank you for being an important part of NETRF’s community. Without you, we would not be able to Spark Hope.
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Elyse Gellerman, Chief Executive Officer
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In Memory of Carol BranamanNETRF has lost a leader in its community to neuroendocrine cancer. Carol Branaman died in early June. Carol joined the NETRF Board of Directors in 2011. She was Chair of the Board from 2014 through 2016 and Vice Chair from 2017 to the present. Carol’s involvement in NETRF was inspired by her own experience with NETs. She was captivated by what research was being conducted in neuroendocrine cancer, realizing that research was the first step to understanding neuroendocrine tumors. (MORE)
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New Targeted Therapy Shows PromisePazopanib improves progression-free survival in early testing
University of California, San Francisco researcher Emily Bergsland, MD, presented data at an annual gathering of oncologists about a clinical trial of pazopanib for GI NETs. The data showed patients taking the targeted therapy went longer without tumor growth than those taking a placebo. (MORE)
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Welcome to NETRF's
New Director of Research John Kanki, PhD, has joined NETRF as Director of Research. In this position, Dr. Kanki will oversee the strategic, scientific, and operational goals of the NETRF research award programs. Dr. Kanki is an accomplished research scientist with an extensive publication record. He has conducted postdoctoral research in neurobiology, developmental biology, and pancreas organogenesis/diabetes. (MORE)
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Robust Response to Grant AnnouncementResearchers from 20 different states across the U.S and 19 countries worldwide, responded to the Neuroendocrine Tumor Research Foundation’s 2019 call for grant applications. (MORE)
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Donate Tumor Tissue to Help Research
Consenting to donate excess tumor tissue, from a biopsy or surgical procedure, helps advance our knowledge of NETs by providing researchers with an essential resource. See our FAQs about tumor tissue donation. (MORE)
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Rocking Hope
Susan Garrett, along with her friends and family, organized a day of family fun in Roxboro, NC, to raise money for NET research. Inspired by another NET patient in the community, the event featured "Rocks for Hope" painting. The inspirationally decorated rocks are placed throughout the community to offer hope and joy to those who come across them. (MORE)
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Nashville Star to Headline August Fundraiser in D.C. Area
Chad Bearden and other country music artists will play a daylong event benefitting NETRF on Saturday, August 24, in Severna Park, MD. Beyond raising funds to support research of improved treatments, organizers of "Fight NET Cancer with Katherine" also hope to raise awareness about NETs and promote earlier diagnosis. Katherine Mueller, who is living with NETs, says knowledge is power that can help point us toward a cure, "I will continue to learn as much as I can about the disease," she said. "I will advocate for research, and most importantly, I will never stop fighting." (MORE)
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NETRF Career Opportunity
Development Assistant
NETRF is accepting applications for a position as a full-time Development Assistant, based out of the organization's headquarters in Boston, MA. (MORE)
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Drs. Sue and Tom O'Dorisio will speak during the 2019 Chicago conference.
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| Announcing Two
NETRF Education ConferencesWhether you are newly diagnosed or are a veteran NET patient, attending an education conference is a great way to learn more about NETs and become connected with others.
As always, participation in our conferences is free of charge. We believe patients and caregivers should always have free and easy access to education and resources. We provide breakfast and lunch during the conference day. For out of town guests, we have secured discounted hotel rooms.
Denver – August 10, 2019We invite you to join us in Denver on Saturday, August 10. Working with experts in the Rocky Mountain region, our agenda includes Dr. Eric Liu, Dr. Lauren Fishbein, Dr. Heloisa Soares, and Dr. Mark Lewis.
Chicago – September 14, 2019
Enjoy the end of summer in the windy city. Register for our Saturday, September 14 conference in Chicago. Co-hosted with the University of Chicago Medicine and co-chaired by Dr. Xavier Keutgen, the agenda features additional speakers from the University of Chicago Medicine, Mayo Clinic, the University of Iowa, and guest speaker Dr. Pam Kunz from the Stanford University Medical Center.
Learn more about both of these conferences, register to attend, and reserve a hotel room.
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NETRF Podcast Coming SoonListen and Learn
NETRF is pleased to announce our newest education program. Covering "all things NETs", NETRF interviewed more than twenty NET experts and patients from around the world in our podcast series: NETWise. Podcasts present information directly from the voices of leading experts in a way that is compelling, accessible, and portable. Subscribe today so that you can be notified when we release the podcast. (MORE)
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Managing Heat and Humidity
Individuals living with cancer may have increased sensitivity to heat and humidity. Learn how to prevent heat-related illness and to recognize signs and symptoms. Taking a few extra precautions can help you safely navigate summer’s high temperatures, without risking any health setbacks or emergencies. (MORE)
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