New outreach report, new funding and patient resources available, and more
New outreach report, new funding and patient resources available, and more
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New Ependymoma Outreach Report Highlights International Support on Ependymoma Awareness Day

Image of golfers at a community event benefiting CERN Foundation and National Brain Tumor Society.

2023 Ependymoma Outreach Report

In a groundswell of international support, patients, care partners, medical professionals, and advocates participated in a variety of events marking May 10, 2023, as Ependymoma Awareness Day. The 2023 Ependymoma Outreach Report features different ways people around the world raised awareness for ependymoma!

Request for Proposals

The submission deadline for the PFA Ependymoma Translational Research Award letter of intent is this Saturday, July 1, 2023. NBTS seeks proposals that would support innovative translational research designed to address critical problems or barriers to progress in the field of Posterior Fossa A (PFA) ependymoma. Applicants can request up to $450,000 in funding over three years.

Explore Updated Patient & Care Partner Resources

Being diagnosed with a brain tumor or caring for someone with a brain tumor can be a challenging and stressful experience in many ways. Fortunately, there are resources available to assist people with brain tumors, their families, and their care partners in navigating these challenges. The National Brain Tumor Society recently updated a curated list of resources relevant to the brain and spine tumor community that is available in a user-friendly format on the website.

NBTS Represents Community During the NCI Office of Cancer Survivorship Webinar

At the NCI Center for Cancer Research’s Neuro-Oncology Branch (NOB), a group of researchers led by Deputy Branch Chief Terri Armstrong, PhD, aims to understand patients’ lived experiences in order to develop survivorship care strategies that can be integrated into standard neuro-oncology practice. NBTS represented the voice of the brain and spine tumor community at the Advancing the Science of Survivorship in Neuro-Oncology conference.
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With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.
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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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