Start the new year with a collection of resources and inspirational stories
Start the new year with a collection of resources and inspirational stories
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Ependymoma Community Blog Commemorates Five Years
Offering Unique Insight

Image of an invitation to read a sollection of articles written by the ependymoma community.
The Ependymoma Community Blog began five years ago to feature a collection of articles written by members of the ependymoma community. Today, there are five authors — Tamiko, Adam, Jennifer, Sarah, and Matt — sharing advice to help others with ependymoma cope with their illness. Navigating a rare brain and spinal cord tumor comes with additional challenges that are particular to the disease experience. The blog articles help to articulate the unique perspective of dealing with an ependymoma diagnosis and offer tips, insight, or support. Explore the blog to find posts on a range of topics: Consulting with Doctor Google, Survivorship: What’s Next?, Coping with Scans, Be Your Own Advocate, Intimacy and a Brain of Spinal Cord Tumor Diagnosis, and more.

Find Helpful Resources on CERN Foundation Website

The CERN Foundation website offers a wealth of resources that may help patients with ependymoma and care partners navigate treatment, care, and survivorship. Check out this section of the website to find the following resources:
If there is not a specific resource listed that you are looking for, please reach out to us with your request.
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Support the Ependymoma Fund for Research and Education
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.
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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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CERN Foundation PO Box 217 | Zionsville, IN 46077 US
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