New community survey, plus clinical trials added to Ependymoma Key Issues
New community survey, plus clinical trials added to Ependymoma Key Issues
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Your Survey Participation Will Guide Future Educational Resources for the Greater Brain and Spinal Cord Tumor Community

Image of a young man taking a quick survey on his laptop.

Complete the Patient and Care Partner Survey

We want to hear from you! As a patient, care partner, or former care partner, your participation in this brief survey will help the National Brain Tumor Society and the CERN Foundation create educational resources for the brain and spinal cord tumor community and increase awareness of clinical trials and biomarker testing to improve care. This anonymous survey will take only 5-10 minutes to complete.

Ependymoma Community Updates Ependymoma Key Issues Document

The Ependymoma Key Issues were recently updated to include clinical trials. This important change highlights the urgent need for our community to have access to clinical trials when making treatment decisions.
The Ependymoma Key Issues effort helps amplify the voice of the ependymoma community within the larger brain and spinal cord tumor community and international medical professional network in a cohesive and unified format.
 
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Support the Ependymoma Fund for Research and Education
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.
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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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