Watch Ependymoma Essentials on Radiation Therapy for Pediatric Ependymoma
Watch Ependymoma Essentials on Radiation Therapy for Pediatric Ependymoma
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Watch Now: Ependymoma Essentials
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Ependymoma Essentials - Episode 2: Radiation Therapy for Pediatric Ependymoma
Feat. Dr. Torunn Yock and Tamiko Toland
The Ependymoma Essentials video series is specifically designed for families in the early stage of diagnosis and treatment of children with ependymoma. This project aims to create educational videos that communicate reliable and trustworthy information in collaboration with leaders in the ependymoma community. The second episode focuses on discussion about radiation therapy for pediatric ependymoma.
Key takeaways from this episode include:
  • A discussion about the risks and benefits of any radiation plan should be part of your consultation
  • Techniques have improved over the years and science has revealed more understanding of how to best - and more precisely - use radiation therapy
  • Every situation is unique, so it's important to talk with a pediatric radiation oncologist about your child's specific case
  • Standard practice is to start radiation 4-6 weeks after surgery is complete, but it may be safe to wait up to 9 weeks if the child needs more time to recover from surgery
  • It is okay to uphold your usual parental boundaries with your child even when they are going through treatment
Watch Episode 2: Radiation Therapy for Pediatric Ependymoma.

The Sky Is the Limit:
My Cancer Story

By Kyle F.

Fresh out of dental school, newly married, and in the best shape of his life, the last thing Kyle would’ve expected was a cancer diagnosis a year later. His story helps portray the roller coaster of emotions and offers hope to others that some of the most beautiful things can come out of our worst trials.

Read Kyle’s Story.
 
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With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.
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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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