pALS Newsletter - Fall 2023 |
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We're excited to bring you some fall news! Our community members have been busy these past few months, read below to see their achievements!
We want to see your fall photos! The weather is cooling down and the holidays are on the way! Be sure to email your best fall photos to kacie.banegas@teamgleason.org to be featured on our social media.
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Thank you to Her ALS Story!
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Team Gleason would like to extend a special thank you to Sunny, Leah, and Alex of Her ALS Story for attending our monthly Lunch and Learn session. This fantastic group spoke to our team about their experience as young women facing an ALS diagnosis, their recent Warrior Weekend in Cape Cod, and answered important questions to help our team continue learning.
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Her ALS Story on their 2023 Warrior Weekend in Cape Cod
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Her ALS Story seeks to raise awareness that ALS impacts young women diagnosed before 35 and provide a community for them to connect, learn from each other, and find support so they can live their best lives. Team Gleason staff members took home valuable lessons and advice to help us enhance our service to the ALS community. Thank you again for sharing your stories!
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Friend of Team Gleason and pALS Dale Clark's racehorse No White Flags won at Delta Downs in Louisiana on October 13th, 2023. Congratulations!
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Val Kiper Golf Tournament
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The 2nd Annual Valerie Kiper Golf Tournament was held on Monday, October 9th at Tascosa Golf Club in Amarillo, TX.
Dr. Valerie Kiper was diagnosed with ALS in December 2020. She currently serves as the Regional Dean of Texas Tech School of Nursing. Valerie has received the service of Voice and Message Banking through Team Gleason, allowing a synthetic version of her voice to be created using recordings.
With nearly 150 participants, the event raised critical funds benefitting Team Gleason's program services.
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Gleason Gras - Mission Possible
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We're excited to announce the 11th year of Gleason Gras on 11/11 in New Orleans!
The purpose of this event is to raise awareness for ALS and to support Team Gleason’s mission is to improve life for people living with ALS by delivering innovative technology and equipment, as well as providing and empowering an improved life experience.
For pALS in the New Orleans and surrounding areas who would like to attend, please reach out to pals@teamgleason.org. For more information, please visit GleasonGras.org.
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Seat Elevator Testimonial
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"The seat elevator on my Numotion power wheelchair that I was able to obtain thanks to your grant is awesome. It allows me to look people in the eye, it makes me visible as I’m at a height people will notice me at and I can adjust the height to be at the same height as others at tables. Being more visible when out in public makes it safer for me. I’m grateful to everyone at Team Gleason. Thank you so much!” -Jeffrey J., Midland, TX
Special thanks to the Numotion Foundation for their continued support.
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When Cynequa applied for a Team Gleason Adventure, she wrote in her application: "I would like to explore the land of my ancestry which has been deep desire. Because I am a slave descendant, my history was lost. To have an opportunity to visit the land of my beginning would be life changing."
Team Gleason is honored to have the opportunity to help Cynequa fulfill this dream with a trip to Boone Hall Plantation and Gardens.
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The Rise of the Rodriguez |
"WE DID IT! 6 states - ALL 4 Disney Parks- 6 destinations and memories I could only dream of giving my kids!"
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| Modest Mouse and the Pixies were playing in Chicago and Jennifer was going to make it happen.
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Stay In Touch With Team Gleason
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Join our next Team Gleason Virtual Zoom Gathering for both those living with ALS and their caregivers. We are inviting everyone - no matter where you live! First Thursday of Every Month at 12pm CST.
Need Additional Support? *Please note, meetings below are now held on the second week of each month.
Second Wednesday of Each Month* | 8pm CST: A gathering focused on adult children of persons living with ALS
Second Thursday of Each Month* | 1pm CST: A gathering focused on caregivers of those living with ALS
Members living in Louisiana and Mississippi can also email Kelly (below) for information on an additional meeting group.
We hope you can join us! If you would like to be invited to participate, please email kelly@teamgleason.org.
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CHOOSE TO REUSE! To return or donate equipment please contact returns@teamgleason.org so we can best assist with the logistics of the return or donation.
If we are able to accept the donation then Team Gleason will email prepaid shipping labels for the boxes.
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