Patient Experience Newslink
Patient Experience Newslink
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The Beryl Institute
PX Newslink
PATIENT EXPERIENCE NEWSLINK is The Beryl Institute's monthly publication featuring important policy analysis, publications, research, press and current affairs to enhance and inform your work.
POLICY  

FDA Challenges Sponsors to Create New Approaches to Patient Experience Data
The FDA is challenging drug sponsors to come up with their own ideas for identifying and gathering the kind of patient experience data that can bring ordinary people closer to the clinical trial process without sacrificing safety or efficacy. (CenterWatch, December 2018)
5 Ways Nixing The Affordable Care Act Could Upend The Entire Health System  
If the district court ruling that the Affordable Care Act is unconstitutional were to be upheld, far more than the law’s most high-profile provisions would be at stake. (Kaiser Health News, December 2018)
The SUPPORT for Patients and Communities Act — What Will It Mean for the Opioid-Overdose Crisis?
Although the 250-page law does little to further a coordinated federal strategy for addressing the opiod epidemic, many of its provisions will be beneficial for people with substance use disorders. (The New England Journal of Medicine, January 2019)
Sponsored 

Champions of Health Unite
The HIMSS Global Conference & Exhibition, to be held February 11-15, 2019, Orlando, FL, brings you the world-class education, cutting-edge products and solutions, and unique networking opportunities you need to solve your biggest health information and technology challenges – all at one time, all in one place. Expand your knowledge and dive into a variety of compelling topics with HIMSS19 Patient Engagement & Experience Summit, optional events, exhibit specialty areas, networking, and more. (HIMSS, 2018) 

PRESS

Patient Experience Five Times as Likely to Drive Consumer Loyalty as Marketing  
Patient experience is the primary driver of patients' consumer loyalty at health systems, hospitals, and physician practices. (HealthLeaders, December 2018)
HAIs, Sepsis and More: 8 Leaders Share Patient Safety Goals for 2019
Patient safety is a top priority for healthcare executives, with leaders constantly looking for new ways to achieve a safe and positive healthcare experience for all patients. (Becker's Hospital Review, December 2018)
Lower your Risk of Making Harmful Medical Errors With This
Improved communication between physicians, nurses, and patient families may reduce the incidence of harmful medical errors and perhaps lower the risk of malpractice claims. (MDLinx, January 2019)
PUBLICATIONS
 
Patients’ and Family Members’ Subjective Experiences of a Diagnostic Evaluation of Mild Cognitive Impairment
People with a diagnosis of mild cognitive impairment often struggle with uncertainty and fear when learning of and coping with their diagnosis. (SAGE Journals, December 2018)
Assessment of Patient-Centered Approaches to Collect Sexual Orientation and Gender Identity Information in the Emergency Department: The EQUALITY Study  
In this matched cohort study, sexual and gender minority patients reported significantly higher patient satisfaction with registrar form collection compared with nurse verbal collection. (JAMA, December 2018)  
A Brief Review of Single-Item and Multi-Item Quality-of-Life Measures for Medicare Patients  
A controlled trial showed that when patient-reported measures were linked to patient education materials and explicit directives to clinicians, care improved. (Journal of Ambulatory Care Management, January 2019)  
FROM THE INSTITUTE

5 Ways to Impact Your Patient Experience Success in 2019
Stacy Palmer, CPXP, Senior Vice President at The Beryl Institute, shares The Beryl Institute 2019 commitment to the global patient experience community to continue seeking ways to support and elevate your efforts through offering the most relevant research, resources and connections. (January 2019)
To Care is Human: 3 Considerations for the Future of Patient Experience
Jason A. Wolf, PhD, CPXP, President at The Beryl Institute, shares that as we recognize the opportunity to care for one another as human beings is the essence of our work in healthcare, we are realizing the true potential healthcare has to offer. The Influence Factors Study was made possible with the support of Siemens Healthineers and provided framework for the three considerations. (December 2018)
Managing Multiple Chronic Conditions During Care Transitions of Older Adults
Dr. Chantal Backman RN, MHA, PhD, Assistant Professor at the School of Nursing at University of Ottawa, shares that person-and family-centered care transitions should focus on the need for active involvement of older adults and their families in managing care transitions (December 2018)
FROM PATIENT EXPERIENCE JOURNAL VOL 5, ISS 3

Barriers and enablers of patient and family centred care in an Australian acute care hospital: Perspectives of health managers
The aim of this study was to identify and explore organisational barriers to, and enablers of, patient and family centred care within an Australian acute care hospital from the perspective of that hospital’s management staff.
Racial/ethnic and geographic differences in access to a usual source of care that follows the patient-centered medical home model: Analyses from the Medical Expenditure Panel Survey data
This study examined racial and geographic differences in access to a usual source of care and it further explored these differences among individuals who had a USC that followed the patient-centered medical home model.
What older adults want from their health care providers
The study sought to identify unmet health care needs of older adults and opportunities for service improvement in a high need suburban neighborhood of a prairie province.
Patients educating health care providers on Lynch syndrome
The goal of this study is to assess patient-reported outcomes from clinical interactions where LS patients educate their providers.
Join the discussion on patient experience topics in The Beryl Institute LinkedIn group.
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The Beryl Institute provides Patient Experience Newslink to share a broad range of current patient experience news and headlines. The Institute does not endorse the views expressed via these links or any products or services offered.
Special thanks to our Supporting Partners. These organizations have contributed to the future of the field by supporting the continued growth of The Beryl Institute as the global community of practice on improving the patient experience.
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