The landscape for treating urea cycle disorders (UCDs) is rapidly evolving, thanks in large part to significant investment from our industry partners. This investment has provided the community with a wide range of treatment and therapy options. NUCDF’s unwavering mission is to save lives and improve outcomes for individuals with urea cycle disorders. In line with this mission, NUCDF established a transparent industry alliance program dedicated to delivering crucial updates on clinical trials and emerging treatments to our community. By providing the latest status updates and educational materials from the industry, NUCDF families will have the essential information needed to make well-informed treatment decisions with confidence.

You Can Help Cure the Cycle

On October 4, join families from around the world in a powerful mission to move together and raise funds for NUCDF Fellowship Grants, making a meaningful impact for a brighter future. Together, we can cure the cycle.

Check Ammonia Awareness Month

Mark your calendars!

October is Check Ammonia Awareness Month. During the month of October, we will be sharing information, resources, and stories centered around the importance of checking ammonia. One test can save a life.

Be sure to join us in sharing this important message.

Recap of Third TeleECHO

Our third TeleECHO took place on Tuesday, September 16, and focused on the importance of diet in urea cycle disorders.

Find recordings or register for our next session HERE.

Registration is now open for Session 4: Long Term Management scheduled for Tuesday, November 11, at 5 p.m.

UCD Symposium Recap

On Sept. 1-2, 2025, in Kyoto, Japan, research on urea cycle disorders took center stage in front of the international research community as NUCDF co-chaired the 6th International Symposium on Urea Cycle Disorders. The event was held as a satellite meeting to the International Congress of Inborn Errors of Metabolism (ICIEM). NUCDF's research partner, the Urea Cycle Disorders Consortium (UCDC), also co-chaired the meeting. .