Research

An international gathering of leading NET clinicians and researchers in March gave top recognition to an active NETRF-funded research study to develop organoids or mini-organs in the laboratory. NETRF granted an Accelerator Award to the Hans Clevers' Lab at Hubrecht Institute, Netherlands, to develop NET organoids to expand the field’s preclinical NET research tools. An organoid is a laboratory replica of tumor cells that researchers can study to understand the nature of neuroendocrine cancer and to test new treatments  Two years later, the lab's progress is attracting attention and hope. (MORE)

Get Involved

A high school senior from Michigan takes action following her neuroendocrine cancer diagnosis. Dismayed by the delays in her diagnosis, Lilly set out to make a difference by raising money for NET research. She designed, produced, and sold zebra stickers at school To make her zebra as uncommon as she was, Lilly gave her zebra some swagger—a pink mohawk mane—then followed suit by coloring her own hair pink as well. (MORE) 

Education & Advocacy

About one in four NETs occurs in the lungs. Beyond surgery, leading professional associations are not aligned on treatment approaches. As part of a recent patient and caregiver conference, NETRF held in collaboration with The Tisch Cancer Institute – Mount Sinai, we took a closer look at the different types of lung NETs, effective treatment strategies, and the prognosis for typical lung carcinoids.