NETRF 2022 Research Symposium videos now available
NETRF's 2022 Margie & Robert E. Petersen Research Symposium was a huge success, and select video presentations from the November hybrid event are available for viewing here. NETRF’s annual Research Symposium brings together leaders in the field of NET research, including our grantees, to share their latest data and discoveries from scientists who represent the cutting edge of NET research.
Being back in-person (about half attended in person and half joined virtually) generated great enthusiasm and researchers reported that the meeting was NETRF's best ever. The meeting featured presentations of many NETRF-supported awardees whose latest findings resulted in excellent discussions, networking and new collaborations. The meeting included both in-person and online poster sessions, the latter receiving over 500 views.
The Symposium was also used to launch the NET Models Consortium, an international group of investigators willing to work together to advance the development and sharing of NET models. The Symposium session resulted in over 25 investigators from around the world volunteering to form three international working groups: 1) In vitro cell lines; 2) Ex vivo, organoid and spheroids; and 3) In vivo, animal models, to respectively address specific challenges and help improve NET model development and distribution to the NET research community.
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Thriving in NET Survivorship
NETRF's Director of Patient Education Jessica Thomas shares her thoughts on living your very best physical and emotional life as you move forward with a neuroendocrine cancer diagnosis. You can view her talk here.
NETRF is excited to get back out into the NET community and share our many resources, tools and information. If you attend or lead a NET support group, NETRF would love to visit your group in 2023. Please reach out to Jessica Thomas, LCSW at Jessica.Thomas@NETRF.org or 617-946-1782. We can present information (virtually or in person) about NETRF, NET research, psychosocial tools, and tips for living and thriving with NETs.
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KNOW YOUR NETs: Cumulative Treatment Toxicities
Treatment decisions are not always easy to make. There are side effects to consider and we should explore the benefit risk ratio of therapies and treatments for NETS. This means talking about the side effects, how they may impact your life. It is important to work with your NET specialist to discuss weighing the benefit risk ratio of NET treatments. Knowledge is power and we encourage you to watch Cumulative Treatment Toxicities by Dr. Thor Halfdanarson from our 2022 KNOW YOUR NETs Patient Education Conference. He will walk you through side effects according to different treatment types: therapies targeting somatostatin receptors, targeted therapies, chemotherapy and surgery.
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12th Annual Focus on Neuroendocrine Tumors Conference
On February 3rd, NETRF will be at the 12th Annual Focus on Neuroendocrine Tumors conference. This annual event is hosted by the University of Pennsylvania. This program aims to provide patients, caregivers and family members with the information they need to better manage a neuroendocrine diagnosis. If you are attending this meeting, please stop by the NETRF booth and meet Jessica Thomas, NETRF’s Director of Patient Education.
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Dr. Laurie Littlepage joins NETRF Board of Directors
NETRF is proud to announce that Laurie E. Littlepage, Ph.D., the Campbell Family Associate Professor of Cancer Research at the University of Notre Dame, has joined the NETRF Board of Directors effective January, 2023.
“We’re thrilled to welcome Laurie to our Board,” said Elyse Gellerman, NETRF’s CEO. “She brings her impressive academic and research experience as well as her personal experience to her new role, and we are so grateful that she has accepted our invitation.”
“Meeting doctors involved in NETRF has highlighted to me what a special community NETRF fosters through its mission. Research will advance our understanding of NET disease progression and treatment strategies designed to help patients so that they can continue to live life with this disease,” she said.
Dr. Littlepage’s research lab at Notre Dame focuses on breast cancer, as well as addressing scientific questions that are relevant to other cancers. She studies the interactions between cancer cells and their surrounding microenvironment during metastasis, therapy resistance, and therapeutic delivery.
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We are so grateful for our NETRF community and your incredible generosity throughout 2022, including your special year-end support, helping us to start off 2023 strong. Together, with your partnership, we are fueling breakthrough NET discoveries, resourcing the most promising research around the globe to better understand NETs and identify more effective treatment options to build a brighter future for patients living with NETs. Thank you for your continued commitment to NETRF! If you did not have the chance to support NETRF during our year-end campaign, please consider a gift today.
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The Power of Community
NETRF’s research is powered by the generosity of passionate individuals, families, and their communities. Together, they host in-person or virtual events and organize fundraisers that raise vital funds for research and patient education.
Katherine Mueller lived valiantly and courageously with NETs for more than three years. Never one to sit idly by, Katherine, while enduring surgeries and countless treatments for her cancer, mobilized her friends and family to raise money for NET research. After raising more than $128,000, the The Katherine Mueller Fund for NET Research funded a NETRF grant to Dr. Peter Clark at UCLA to study pNETs, the same neuroendocrine cancer that Katherine battled.
While Katherine died in 2021, it was her explicit wish to continue to fund NET research to build brighter futures for patients living with NETs – and that is exactly what her family intends to do to honor her journey and her legacy. In 2023, they will host a special bowling event and community fundraiser in Katherine’s memory. Their goal is to raise enough funds to support another research project to help bring us closer to developing effective treatments and therapies for NET patients.
To read more about Katherine and her family, visit: Katherine Elizabeth Mueller.
To connect with us to schedule an event in support of NETRF, please contact Susie Harrington at susan.harrington@netrf.org.
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