Helping Us Advance Hemophilia Education

KCMS, in partnership with Pfizer and the National Bleeding Disorders Foundation (NBDF), is proud to announce the completion of our hemophilia education initiative. This collaborative effort has resulted in free, clinic-ready tools to support healthcare professionals and individuals living with hemophilia.

From Insight to Impact: Your Voice Shaped This Work
At the start of this project, baseline survey data revealed that 57% of healthcare professionals had limited familiarity with emerging therapies, and nearly half lacked confidence in shared decision-making (SDM) conversations. Respondents cited time constraints, treatment complexity, and patient understanding as key barriers.

Thanks to your participation in the initial and follow-up surveys, we’ve created and refined a suite of educational materials that directly respond to these challenges—and, based on your input, we've even added more tools.

Explore the Resources You Helped Build
1) Short Video Series: Bite-sized clips covering gene therapy, rebalancing agents, SDM strategies, and more
🎥 Watch the YouTube series

2) Simple & Downloadable Toolkit (PDF)

This is Your Final Chance to Share Your Feedback
We invite you to complete the final feedback survey as we close this project. Whether you've already used or are reviewing the resources now, your insights will help us measure impact and guide future efforts.
Take the 5-minute survey.
Participants who completed the baseline and final survey will be entered into a drawing for one of six $250 gift cards, funded by KCMS.

Your dedication to equitable, informed hemophilia care made this work possible—thank you. Visit the KCMS website to explore everything we've accomplished on our grant page.