New NETWise Podcast

The Journey to Diagnosis

Undergoing testing for cancer is anxiety-provoking. Tests can involve things many people don’t like — needles, surgical biopsies, or lying still in a PET/CT scanner tube. But the worst part for many is waiting for results. You might anticipate feeling very happy or sad about your results. But few expect to be confused.

What do these numbers mean?
What is this test supposed to tell me?
Why do I need more tests?

Neuroendocrine tumor (NET) tests have odd-sounding names (5-HIAA, Ki-67, and Ga-68). We will help you to get more familiar with these tests. This episode of NETWise discusses the tests used to diagnose NETs to help you understand their significance. Once you finish this podcast, you will find it easier to talk to your doctor about diagnostic testing and be better able to explain the significance of your test results to friends and family members. Listen now.

Research

Researching PRRT for Lung

David Morse, PhD, Moffitt Cancer Center, is exploring a novel radiotherapy, Ac-225 dotatate, a derivative of Lu-177 dotatate in PRRT for lung NETs in laboratory models. This therapy emits alpha particles instead of beta. Alpha particles are bigger, higher-powered, with a shorter reach, which researchers hope will be more effective in killing lung NET cells with decreased toxicity in surrounding normal tissues. (MORE)

COMPETE Clinical Trial

PRRT to be compared with Everolimus

A new phase III clinical trial called COMPETE compares everolimus, an oral targeted therapy, to PRRT with Lu-177 edotreotide, a radiopharmaceutical under development, in patients with progressive, nonfunctional GI tract NETs and any NETs in the pancreas, which cannot be removed surgically. To be eligible, participants must have tested positive for somatostatin receptors using any somatostatin receptor scan or biopsy. (MORE)

Get Involved

It's Giving Season

Your year-end gift to NETRF can make a big impact. These last few weeks play a pivotal role in how many grants we can award in January. We're reviewing requests for research funding now. Light the way with your gift so we can fund as many research projects as possible with your generous donation. (MORE)

Get Ready for

#GivingTuesday

A charitable tradition takes place on the Tuesday after Thanksgiving. It is called "Giving Tuesday." Across the globe, on this one day, people make gifts to express thanks, create hope, and leave a legacy. Help support the search for a cure to neuroendocrine cancer. Choose to support NETRF this year on December 3 for #GivingTuesday. (MORE)

Book Launch

Aretha's Life in Photos

Photojournalist Linda Solomon just released the book, "The Queen Next Door: Aretha Franklin, An Intimate Portrait," which documents Franklin's personal life and career in photos. Solomon's friendship with Aretha Franklin spanned several decades and allowed her unique access to the Queen of Soul. Solomon hopes the book shows Aretha as a caring, kind, and down-to-earth individual who treasured her family and friends. NETRF CEO Elyse Gellerman and Chief Development Officer Susan Payson were on hand for the National Book Launch at the Detroit Institute of Arts, where a panel of those who knew her best paid tribute to Detroit's Queen Next Door. Solomon has used the book release to increase visibility for NETRF's Aretha Franklin Fund for Neuroendocrine Cancer Research.

Friday Night Football in Texas

Adopts a Zebra Print

On November 15th, Texas Football sportscaster Erin Hartigan had a surprise. Her co-anchor's zebra-print bowtie was part of a plan to raise awareness and funds for neuroendocrine cancer in honor of her late mother. See her reaction. (MORE)

Patient Advocate Spreads Positivity

Daiva Debra Minter, visual artist and photographer, created a Rose Affirmations Postcardbook as a NETRF fundraiser. This beautiful, inspirational 4 x 6-inch book of 12 perforated glossy postcards of colorful roses contains positive affirmations offering hope, strength, and joy. (MORE)

Education and Outreach

A Look at Lung NETs

Every November there is a lot of talk about lung cancer because it is National Lung Cancer Awareness Month. So it seems like a good time to take a closer look at neuroendocrine tumors that occur in the lung. See the different types of lung NETs and why they are treated differently. (MORE)

Fall conference videos posted to YouTube

NETRF's YouTube channel now features two new playlists of NET specialist presentations from conferences in Chicago and Boston. We've highlighted a few talks below. But be sure to browse through both playlists for topics you are interested in.

Thank you to Lexicon Pharmaceuticals for their support of our 2019 patient education conference videos.

Find out first when we post new videos. Subscribe to our YouTube channel and opt-in for notifications of any new NETRF videos.

Coping with loss during the holidays

The holiday season can be difficult for those who have lost a loved one to cancer. The empty spaces in our lives and hearts can be felt more deeply when we are expected to be thankful, merry, and bright. Take a look at these hands-on tips for managing grief during the holiday season to help cope with painful thoughts and emotions. (MORE)

Just for you. New 64-page Patient Guide to NETs.

DONATE

The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.

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